I Advocate to Fight a Good Fight
The past two weeks have been a pain. Literally, pain in my body. You can’t see it unless you watch my gait, or see me trying to sit upright in a chair. You may hear an occasional squeal from the pain. Pain that would make an animal winch out in pitiful cries, try to keep it to a squeak-like squeal. I see so many commercials and videos on the poor pitiful animals living in pain and unfit conditions. I love animals, I have had dogs, fish, turtles, a parakeet. I have three cats. I love my pets. My point is, where are the equivalent advocations in media for those with disabilities? Research commercials featuring studies on cures for illness, disorders, and disabilities are far less, and we are human. Advocacy on a daily basis, not only during a day, week, or month a year.
Of course, I do not cry out in pain often. I hold my crying out and voice pain only when I am tired and don’t realize I’m doing it. Many studies have dismissed the connection between the weather and body pain. I read the literature, the studies, and shake my head (gingerly). Who are they studying, where do these people come from, and do they have the same illnesses I have? Where’s the money for further research into autoimmune conditions, chronic illness, and the incurable diseases so many people suffer through?
Each time there is an atmospheric change of any significant proportion, I feel as if my body is pulling downward through gravity. I feel as if my spine is settling each disc one by one, squashing the cushioning cartilage between them into indiscernible mass. I know it isn’t like this, the picture in my overactive imagination, but I can almost envision weakened muscles stretching and snapping over bone spurs causing sharp electric pains to shoot here and there. Sciatic flares flame down both legs, one side of my lower body to the other. The literature says only one side of a body can be affected by sciatica? I beg to differ. I guess I’m not in the textbook. Walking causes my feet to hurt, whether my toes and feet swell, or pain develops on the topside of my feet, or sting the bottoms of them.
There are days when I feel as if my head, which weighs about as much as a bowling ball, is like a turtle’s head, and wants to sink into my chest cavity, hiding? or simply tired of being up and looking ahead at the long hours left in a day? My husband comes home to a yell out, “Hurry, I can’t take it anymore!” He massages the offending shoulder, I can hear the snapping and clicking. I have relief for almost twenty to thirty minutes, and then it returns.
Photo by jasoneppink
I am not alone. I share my personal illnesses in some fashion with others who deal with chronic pain day in and day out. Autoimmune issues and chronic pain are here to stay. There are no cures. Each time I have pain and I’m fighting it tooth and nail, I know I am not alone. Others share my pain, my suffering, and some even have more than I. This thought can be scary, or it can be the catalyst for moving on past the pain. Writing about my life, about disability, advocating for those who may not have any voice at all. Rooting for those who feel alone, disserted, are unable to find jobs, get training, are ridiculed, scoffed, overlooked, and feel unloved and alone. I write for you. I pray for you. I am one of you.
2. Healthcare and Options for Everyone
Some of my problems are problems others may be able to have temporarily repaired by surgery. No such luck for me. By medical referral, I went to a surgeon last summer. I was there for all of fifteen minutes. I walked in, paid a large co-payment fee, waited mere minutes to be seen; however, in less than five minutes, the surgeon simply said, “There is nothing I can do for you.”
Case closed. No file folder of notes from the referring doctor, no paper flipping, no computer scanning. Two herniated discs encroaching spinal nerves, but no explanations. “I can’t do anything for you. Have a nice day.” The horrors of specialty medicine today, corporations running healthcare, dictating what doctors can and cannot do, large bills, no service. A money-making nightmare. Between the pharmaceutical companies, the insurance companies, and the mega medical conglomerate businesses hanging over and regulating hospitals and doctors, we now have huge problems folks. Obamacare was and is a nightmare. I’m sorry it wasn’t better. Many doctors complained about the changes, and I’ve been a regular in offices for over thirty years. I know a couple who quit practicing medicine because they couldn’t treat their patients, they had to follow a checklist of policy and procedure.
Obamacare was and is a nightmare. I’m truly sorry it wasn’t better. Many doctors complained about the changes, and I’ve been a regular in offices for over thirty years. I know a couple who quit practicing medicine because they couldn’t treat their patients. They had to follow a checklist of policy and procedure. I suppose the ones who could pay the newly issued premiums with Obamacare, were happy to have insurance at all. I can only guess they either needed well-visits, treatment for cold or flu, or something simple. Skyrocketing premiums may not have daunted these people quite as much as those who could not even afford the premiums for simple insurance in the beginning. I’m glad the folks who have insurance, do have it. For those who have a chronic illness, even with insurance, we are hit hard. Most of us pass right by that out-of-pocket expense tally before the first quarter of the year is even out. Now, here we are again, and everything related to healthcare is looming over our heads again.
The horrors of specialty medicine today, corporations running healthcare, dictating what doctors can and cannot do, large bills, no service. A money-making nightmare. Between the pharmaceutical companies, the insurance companies, and the mega medical conglomerate business over hospitals and doctors, we now have huge problems folks. Obamacare was and is a nightmare. It does need to be replaced, but something needs to be there to take its place. I need something, others need what I need. It’s simple. I know many of my doctors complained about all the changes, and I’ve been a regular in offices for over thirty years. I know there are many proponents of Obamacare, and I’m not trying to wave a flag in your face. If you had enough money to pay for more than well visits a couple times a year, great. If you had the money to pay more for more care, that’s better. Many couldn’t do either. I’m guessing there are more could not in this country than there are I could’s.
3. Healthcare, advocacy, and opportunity.
We need all of these. Please stay informed. Everyone needs to advocate for healthcare whether you have a disability or not. I pray we all receive the opportunity and the access to good quality and reasonably priced care without being tossed out because of a pre-existing condition as was the case before Obamacare. We are all in this together. Good health insurance for all is best for everyone.
Do you agree? Disagree? I want to know what you think!